Some people spend their entire lives trying to figure out their goal. That is not the case for a teenager from New York City who suffers from a rare and painful condition called epidermolysis bullosa.
The 16-year-old John Hudson Dilgen was born with the condition that causes his skin to tear apart, blister and easily shear. Common daily activities, such as using a spoon or holding a cup, are a struggle for him.
In a recent interview with Special Books for Special Kids, a non-profit organ that shares inspiring stories of people with setbacks, John Hudson said he believes there is a reason for everything.
"Everything should be done for a reason," he said. "… Occasionally, when I meet someone and they say that … I've helped them, because sometimes it's hard to think:" How did I help you? "
But after 16 years … you meet so many people who say: & # 39; You know … you're a great person, & # 39; continued John Hudson. I might have come to believe them. And maybe I'm doing something right.
"So, if this is the payment of helping other people, apply it."
How is life for him?
John Hudson needs day and night care from his parents and nurse. His body must be wrapped in order to help protect his fragile skin.
Something as simple as bathing is very painful for him because of his open wounds.
"When I take a bath, the pain is just awful," John Hudson told the Daily Mail in November. "I mean, I hate to get in the water, but I know it will help my skin, so I just have to do it."
Although he lives in pain and swallows more than a dozen medications every day, Staten Island's teenager said he never gave up hope.
"I may have sounded like that, but no, no, I never really lost hope," John Hudson said with tears, adding that his family helps him stay strong.
"You have a choice, I think," said his father, John Dilgen, in the video. "You can choose to live miserably or you can choose to live with a smile, so I think that was our choice."
"If you can literally do nothing about it, make the best of it," the teenager added.
When did his parents know that something was wrong?
John Dilger said that from the beginning he knew something was wrong.
"The moment he was born, it seemed like someone had taken a surgical glove and rolled it up to his fingertips," the father explained. "I saw the panic in his [the doctor’s] eyes."
Epidermolysis bullosa is a genetic disease without cure. It causes deformities of the hands and feet. EB occurs in about 20 of the 1 million births, according to Stanford Children & # 39; s Health.
What else did John Hudson say?
John Hudson told SBSK that he loves superheroes because they never give up and they always fight until they save the day.
"Just because something has happened does not mean you can not do it," he said. "It simply means that it is difficult."